Sinclair and Rush are partnering with Epilepsy Sucks UK, a fantastic charity that supports those suffering with Epilepsy. They are a small charity that funds anti-suffocation pillows which have saved thousands of lives. They also offer general support to those with Epilepsy and their families. Laura and Mark Harris daughter Ella was diagnosed with a severe brain malformation in 2015 and suffered a tonic clonic seizure. Their lives drastically changed over night. The support they have received from Epilepsy UK since it happened has been second to none. There is a bank of people there to advise and support; this is so important, more than people would think. There has been a lot to learn fast for Laura, Mark and Ella and it wouldn't have been possible without the support of this charity. Scroll along the images to see this wonderful family!
Ella's condition is rare, she was born with a brain malfunction and rare brain malformation called Band Hetertopia. This has lead to her having learning difficulties, epilepsy, autism, selective mutism and problems with her motor skills.
Ellie from Sales at Sinclair & Rush met with Laura recently to find out all about this fantastic charity, learn more about Epilepsy and hear about the wonderful Ella!
"It was a pleasure to meet such a dedicated volunteer and Mother. We are honoured to support Ella, the family and Epilepsy Sucks UK" - Ellie Sales - see photo of Ellie S&R & Laura.
Laura and her family consistently fundraise for this charity, previously raising £4k via Youtube and Tiktok videos. This time, they are hosting a fantastic ball with lots to do, buy and see and all the proceedings which go to the charity. For Laura, helping this and other similar charities is at the heart of what she does as her family have and always will be affected from this.
Laura has become a brand ambassador for Epilepsy Sucks UK and on a daily basis has Q&A sessions with other parents and adults that have Epilepsy via social media. She is very knowledgeable on the topic of seizures and the thousands of types, with new ones happening all the time. (It is shocking just how many different types of seizures there are!) It is an ever changing condition that needs as much money and support as possible.
Sinclair and Rush are assisting in the fundraising of this wonderful cause by donating £300 to Ella's Ball. All the money raised at the ball will be given to the charity to buy as many anti-suffocation pillows as possible. There is a backlog of people in need of these pillows!
"Epilepsy starts the war, but we bring the pillow fight" - Sallieann Gould Founder of Epilepsy UK
If you are able to donate yourself then please go to the Just Giving Page HERE, the families will be so grateful!
Ella's Ball will take place at The Cave Hotel based in Faversham. It really is a stunning venue for this Charity Ball. CLICK HERE to have a sneak peak at it!
If you want to attend the ball on Saturday 7th October 2023, there are still a small number of tickets left then the cost is £100 and around £30 of this goes to the Charity with the remaining going on the food/ drink and entertainment. Just contact Ellie Sinclair & Rush on ecachia@sinclair-rush.co.uk to secure yourself a ticket!
Event details and menu as follows:
⭐️Arrival drink (Prosecco/ Bottled Beer/ Orange Juice)
⭐️Half a bottle of wine
⭐️The Dirty Cowgirl will be served for dinner which includes:-
CREEKSTONE USDA SMOKED BRISKET, OAK SMOKED ST LOUIS PORK RIBS, CAJUN CHICKEN STRIPS, KOREAN BBQ SAUSAGE, KOREAN FRIED CHICKEN WINGS, PULLED PORK
It will then come with the below sides per table:
SEASONED FRIES,CRUNCHY ASIAN SLAW,SWEET CAJUN CORN,MAC & CHEESE,SMOKED PIT BEANS,PICKLES
And desserts will be:
TANGY LIME CHEESECAKE, BAO DOUGHNUT - Nutella & Bischof, Vanilla Ice Cream
⭐️Music will be flowing to keep you all entertained including a Saxophonist and DJ! Whilst a raffle/live auction will be taking place
We really are so pleased to be supporting Ella, her family and Epilepsy Sucks UK. Help starts at home and the more support we can show, the better... We will update you all how the Ball went with photos and videos as well as an update on how much was raised for this fantastic charity! Best of luck with it all Laura :)
This is what the lovely Laura has to say about her experience with Epilepsy: "Living with epilepsy can be tricky to say the least. It creeps up on you when you least expect it, turning our lives upside down.
For me, as Ella's mum, I am so proud of her with how she copes with all the challenges in her daily life, but dealing with the seizures she really is a super star. She takes it all in her strides and just gets on with it, when I am left panicking half the time!
It's been so important for us as a family to have found ESUK. Not only have they been a wealth of knowledge and support in our darkest times, but they introduced us to the anti suffocation pillows. For this I will be eternally grateful.
This is why, we have always raised money for this amazing charity and why it will always remain so close to our hearts. We are extremely thankful to Sinclair & Rush for their very kind and generous donation towards the organisation of Ella's Ball and Ellie's help and support orchestrating this. We thank you from the bottom of our hearts."
To find about more about Epilepsy Sucks UK you can visit them on Facebook , Instagram or Twitter
To visit Laura and Ella's popular Instagram profile where they educated many on Epilepsy CLICK HERE
"There are 60,000 children diagnosed with epilepsy in the UK. These children are tough but not invincible." Sallieann Gould Founder of Epilepsy UK
